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toiletzones9
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Member Since 05/16/2018 17:06:53
Last Online 05/22/2018 09:29:13
Last Updated 05/16/2018 17:19:21
 

Contact Info

Personal name: Abbott paper
#1 QRZ: 1AA001
Address: 2556 Red Hawk Road
Saint Cloud
NY
Info & Personal Notes:
Toilet Training Carl

I am sure that one time or another, the majority of us have been told of our children's limitations. Whether physical or mental,
their disabilities will keep them from attaining. So we were told.

In our situation, our son, Carl, was diagnosed as being severely disabled; that educating him was "waste of currencies."
Milestones that parents of normal kids look forward to as their kids mature, we could not even expect to hope for. Like toilet
training.
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Just a little background on our beautiful son: Carl was born July 25, 1978. We took was a healthy infant. Little did we know what
was ahead of us. If he was six months old, we became a little concerned. He did not appear to be growing because we thought he
should. Physicians who stated that all babies grow at different rates saw Carl.

At eleven months, we had Carl tested in the Winston Prouty Center in Brattleboro, Vermont, a pre-school for children with a huge
variety of problems. He was diagnosed as being developmentally delayed. (That is what they tell you when they don't know what is
wrong.) When he was 14 months old, he started attending the Prouty Center five days a week. This lasted until Carl was five years
old.

When Carl was two, he had been seen by experts who told us that he had endured from some sort of damaging brain insult or injury.
We asked us if we had considred the atomic power plant in our city as the trigger. When you don't understand the reason, you think
about everything and anything. Can it be something in our water? Can it be that the deodorant I used when I was pregnant? Was it
bad genes? We all go crazy with it.
toilet
The specialists recommended that my husband Bill and I opt for genetic counseling. At the time, we thought that supposed blood
tests from each of us which would tell us whose fault it was. How wrong we were! If nothing else comes out of having a special
needs child, you sure know a lot. I even know what an IEP is!

Finally, we wanted more replies, so we went for genetic counseling. The genetic specialist, Dr. Eugene Hoyme, was among the
kindest doctors we've met. (And we've seen many.) He asked us a lot of questions, quantified Carl's head, studied his face and
ears and even looked at his fingerprints under a magnifying glass. Dr. Hoyme left the room for approximately five minutes, which
seemed like an eternity. Then he came back with his diagnosis: Rubinstein-Taybi Syndrome.https://www.scoop.it/t/top-best-flushing-toilet-reviews

He looked at Carl's baby pictures and advised me that he'd have been diagnosed at birth, had anyone understood what they were
looking for. Many kids with RTS have very clear facial features and other wellness and bodily identifying characteristics at
birth. Carl had none of these, and there's still no definite answer as to what causes RTS.

Enough of this. We all have our own stories and that is how ours came to be.

Carl attends a regular school in a different city, using a self-contained classroom for students with many disabilities. He's very
busy and needs constant supervision. His development has been slow, but he is making progress. His level is roughly that of two to
three year old, with his speech and fine motor skills below this level and his gross motor abilities above it.

TOILET TRAINING PLANNING

In September of 1987, Carl got a new instructor, Jan.. She had extensive expertise toilet training children with disabilities. Jan
sounded nice and she seemed to understand her stuff. She stated she hadn't seen a kid more ready for coaching than Carl. In his
IEP meeting Jan asked us if our bathroom was upstairs or down. I replied that we did not have a toilet, we had an outhouse! Her
jaw dropped open and she had nothing to say. Then the school nurse spoke up and stated, "You didn't know you're at Vermont, did
you Jan?" Jan had recently moved from Pennsylvania.

She also gave us the book, Toilet Training the Retarded, by Foxx and Asner. Did that mean that our son was retarded? Must be. I
read the book. It was not the simplest book to read. Sort of like reading a guide on How to Clean Toilets. I got a basic
understanding of what we're going to perform with a few alterations to fit Carl's requirements.

Most of us have ways of dealing with our children, and humor is just one of the tools we utilize. That is how we live. In the
beginning, Jan said to purchase bigger underpants than Carl would normally wear. I didn't even understand how big he would wear. I
had never bought anything diapers--roughly 16,425 of these.

Jan got her bigger underpants. My sister has a costume shop and just happened to get a men's pair of BVD's in size 56. I place
them Carl's luggage and away to college they went. Thank God, Jan, also, can appreciate a little humor.

THE EXPERIMENT BEGINS

We started the bathroom training regime on January 19, 1988. If we'd known what we were really in for we may not have started. No
achievement is minor though, and we know what it requires our children to achieve even the smallest target. I seen Carl's
classroom on the first day of this program to acquire more instructions. As I walked into the door, I nearly cried. There he was
sitting at the corner with Jan, a spoonful of food held to his mouth. She was saying, "Carl wet, no eat"

However, Carl loves meals. This was the app? This was what we'd have to do? No way! It appeared so barbaric and so cruel. I've a
soft spot when it comes to my oldest son. I can not do this to him. To make things worse, my mother-in-law was together with me.
She watched it too and that I understand it struck her soft place for Carl. I found that the water welling up in her eyes.

Part of this program was supposed to give Carl as much fluid as he'd take. He has never been a fantastic drinker, so this was
definitely going to be tough. We gave him sour fluids to make him thirsty, and on the very first day he drank 72 ounces of fluid.
Compare that with the 24 ounces he usually drinks. There were six accidents that first day, and lots of Positive Practices.

Favorable Practice -- how we came to hate those two words. Positive Practice is a six-step part of the program. To begin with,
make him feel that his wet underpants, then help him pull them down, make him sit onthe top 8 toilet best flushing toilet reviews - facebook.com , get him off the restroom. Then
sit him on a chair and say, "Carl moist, no consume," while holding food close to his mouth. Then start over from the very best --
five times! Then there were also the ironic checks every 30 minutes, making Carl feel his pants and saying, "Carl dry, fantastic
boy."

We needed to chart everything. How much he drank, when he voided, either in his trousers or in the restroom. Looking back over all
his graphs, I found a note I'd written at 7 p.m. on the third day, "Bedtime, thank God." We spent so much time in the restroom,
all our time, except if Carl had a triumph. The bathroom was where we lived for much longer than we wanted to.

Weekends were the toughest. Bill worked every one. We made arrangements for our other son, Alex, to be off for the first few as it
was too intense and, at three and a half, he would have a difficult time. It affected us all. Bill would come home from work on
the weekends and I would be in tears saying, "Bill, I can't do this anymore." I'd even try and let him get his clothes changed
before saying anything, but I could not. He had been kinder than I would have been. I'm afraid I'd have called and said I need to
work late, and sit in the car somewhere! We'd take half-hour shifts.

Carl would get so frustrated, so mad, he would pull our hair and scrape our faces. He cried, I cried. One evening I heard Alex
inform Carl, "You see this piece of ham? You can't have it until you go pee-pee on thebest flushing toilet - read more ."

1 thing that actually helped to preserve our sanity was college. Jan completed the weight of this program during the afternoon
while Carl was at school. The program couldn't have succeeded without her participation in this joint effort. There were days I
just didn't want to attempt anymore. Jan said it was taking longer than she anticipated. Carl was so uncooperative. There were
many times I was expecting Jan would say, "This isn't working, let us forget it for now." However, I knew there was no turning
back. The more successes he had, the more determined we became. It was a battle of wills; that had been going to win? In the long
run we all did. Especially Carl.

A different area of the program -- a very important one -- was rewards. Carl has a passion for publications. He'd kill for one. He
used to eat them and tear out the pages, and our floors are carpeted with pages of magazines. He just flicks mouths and them the
pages. When he had a success, we'd give him a large fat magazine.

Carl also enjoys music, so we used a video cassette of the group Highway 101 playing their tunes. He must have watched the tape
400 times. He got so he'd have a success, then go out of the bathroom directly to the television.

Of all of the college years we have had, this one had more snow than any I can remember. Jan always showed up on those days. I
will never forget her for that. There were days my mother or Bill's would come over to help. And what a help simply having
somebody to speak to.

We had to be very careful about what Carl viewed tv. One time, he had been watching a movie known as "Rat Boy." It was about a
monster who had been half a rat, half boy. Carl was laughing so hard, he wet his trousers. Then there was "Ewoks" the sitter
brought. That you got put away.

Then there was the cat. Alex wanted one so badly. Carl was quite mean to Kitty. He'd take the cat around by the tail, flicking it
like one of his magazines. The cat didn't scratch Carl, so he'd chase that cat around the house laughing and wetting his pants.
This was well into May and Carl had experienced a few weeks without injuries. Bye-bye, Kitty. We found a great house for the cat
and I really think Alex understood. There are sacrifices we must create on a daily basis, but this was a large one for Alex. The
cat was not worth all the work we had set into Carl's independence, only to have him regress.

A few months into the program, Carl was doing really great, with more successes than accidents. We had to watch him attentively,
but perhaps not with the intensity of the previous months. One evening I was coming down the stairs, tripped, and fell, twisting
my ankle. I had been on the floor in agony, and Carl was standing in my feet laughing so hard at me he wet his trousers. I
couldn't wake up, my foot hurt so much better. All I could think was Positive Practice, Positive Practice ... I have to do
Favorable Practice. Finally I stopped seeing stars, but the pee was running down the floor and I was getting wet. Get up. .
.Positive Practice, Positive Practice!

It has been over a year now. We can't recall the last time that he had an accident. He has also learned to pull his underpants and
pants on a verbal signal or a sign. A special achievement, because fine motor skills are among Carl's lower skill areas.

In October of 1988, Carl went to be gut trained since he's a tingling deficiency, causing quite loose stools. In addition, he
needed to be monitored at night. He is doing well; it is a lot easier than the urine coaching. He's about 80 percent there. We
understand he will succeed; it may not be next week or next month, but ask us in annually. There's absolutely no time factor with
our children.b� Never set a time limit on our children.

One of Carl's most significant rewards came when I composed to Highway 101 to inform them that without being aware of it, they'd
been a big part of Carl's success.best They sent him an autographed picture of these. On parents' night at school, Jan hung out the
picture in the hallway with a note saying Carl had received this as a reward for a distinctive accomplishment he'd made. And on
Jan's desk is a picture of Carl sitting on the bathroom with my sunglasses on, just smiling away. She only shows it to certain
people. Individuals who understand.
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